Words
Here's a speech I wrote as the keynote speaker for an awards luncheon the other day, for a group called Advocacy In Media. These are folks who are trying to educate the press on the correct terminology when writing about people with disabilities. It's a subject near and dear to me.
"Thank you. I am honored to be here for the first Advocacy In Media awards luncheon. Because we are talking about 2 things I love very much: Words and my daughter Jillian. I have been writing sports columns for 20 years, the last 14 at The Enquirer. For better or worse, I talk for a living as well, on 700 WLW, weeknights 6-9. Call me.
Jillian is an 18-year-old high school junior, with Down Syndrome. Notice I didnt say she "suffers'' from Down Syndrome. If Jillian "suffers'' from anything, it's listening to me: Do your homework, clean your room, turn the music down. And make sure your boyfriend keeps his hands to himself.
She isn't "retarded'' either. At least no more than the rest of us. Heaven help the next person who refers to her as "Mongoloid.'' The next day, the paper will refer to me as "accused murderer.''
Words remain our most powerful weapons, good and bad. Words soothe and irritate, move and shake. Barack Obama might be our next president because, to many, his words have created for him an image his experience never could. People have called him the new JFK, because his words carry a message of hope and change.
What if, instead of being Barack Obama, presidential candidate, he was Barack Obama, child of a mixed marriage raised by a white mother? Might that change the way some see him?
What if someone looked at me and instead of referring to me as Paul Daugherty, sports writer and talk show host, they called me Paul Daugherty, bigmouthed white guy who writes a lousy column and talks too much. (OK, some people do refer to me that way. But you get the point.)
I wouldnt be living in a palatial estate with servants painting my toes.
My wife and I have spent years trying to break down barriers in school, barriers there forever, partly because the image of kids with Down Syndrome was inaccurate. Why? Because of words. Words create pereceptions. Perceptions harden into reality. If we can't change perceptions, nothing we do matters.
You are the first line of attack. Your words change the perceptions. They can shape a new reality. Better than before. My wife and I have spent 18 years feeling like Daniel Boone. There isn't a trail we havent blazed, a brain full of stereotypes we haven't tried to wash. We can't do it alone. Thanks for your words and your consideration. Thanks for helping create a new and better reality.
21 Comments:
Outstanding blog, Paul. Thankfully we have such souls as yourself that are able to entertain, soothe, provoke thought, and advocate with your words. Hopefully this blog is read by some of the uninformed, close-minded individuals that seem to always attack you in their comments to this blog, and that is helps them take a step back, think, and choose their words more wisely next time. God Bless you, and your entire family, and for once again reminding us all that there is so, so, so much more to life than whether the Reds deal for Joe Blanton, etc. Take care.
Jim,
Gitmo Bay, Cuba
Hey Paul, I usually read your blog and sometimes write on it. I sometimes agree with you but most of the time i think you are nothing more than a jerk and only write things to set people off. However your speech brought a tear to my eye and I want to say thank you for that. ANd of course I will try to make light of this by saying if the music is too loud then you are too old. but in seriousness very touching. Thank you for this little insight on a friday.
paul, many years ago you wrote a column on daddy's little girl which I saved still today. I don't always agree with you but it was by far the best column you have ever wrote and the second best was today.
stubby
well done, very well done
Well done, very well done
Paul this column does not belong on your blog. It belongs on the front page of Sunday's Forum section.
Robert Young
Milford
I echo the previous sentiments, however, I'd have to put you behind bars. Words have power, but only in the hands of the powerful -- and each of us get to determine who does and doesn't have that power. Growing up, I got my butt whipped by my mother whenever I got in a fight because of something somebody said (even if it was about her). Paraphrasing her... 'you can't change them, you can only change yourself'. So, I learned to fight words with words - facts and evidence and even an occassional neatly turned phrase.
Sadly, Paul, people have tried to use the "power of words" argument to curtail the First Amendment for one reason or another for 200+ years. How about a few words for every person's right to use the words they want without fear of violent recourse? Isn't that the business you're in and the protection you enjoy? If, sadly, there's a market for hurtful speech, then work to change the market, not censor the product. I don't listen to Imus -- that's part of doing my part. But, likewise, if I had to defend a person for only using hurtful speech as a weapon, then that's my part, too, lest we add "...except for this list of words..." to the 1st Amendment.
I know the point you're making, and I hope your daughter never has to hear anything like that again, and advocating a more compassionate culture is certainly worth fighting hard for -- to become more alert to how our words reach others. But I'd just like a few words spent on where the line is between discourse and violence. You alluded to it, so I'm not pulling this out of thin air. Let's not start putting people in the hospital, morgue (or worse, jail) for the words they use. Letting them hang themselves with them in the eyes of others is as far as I'm willing to go. You can't force everyone to like or respect you. The trick is to insulate yourself with ones that do.
I wish for you and your daughter the very best. Don't ever let "them" drag you down to their level. Another mom-ism.
Tried my first Keystone Light. Not bad :)
Paul, I always come here to read the blog because there seems to be less of the typical Blog Bickering that one finds on most pages. Perhaps that is the moderator in action, but I still see it on Kiese' blog and Borgman's.
Today I came here and found this post by you.
It was truly a day stopping moment. I was at work, plowing through my day in typical "eat em up, spit em out" fashion and then this came along.
Thank You.
When I am at home later this afternoon enjoying my own children with as much appreciation for them as you have for yours, I will be thanking you again.
Next time you are in the BW in Florence, come on over to the bar, I will buy you a 'Stone for giving me back some perspective on this rainy Friday afternoon.
John in Hebron
Blessings come in many disguises, and sometimes they're right there in front of us. It's how we handle the tough times that measure the mark we leave on the world, not the easy times that fall our way.
Way to hang tough. Good words. Oh, and I'm not one of those who will nominate you for canonization. You're just doing your job, like you're supposed to, and your reward is your lovely daughter's love in return.
The way the world is supposed to work.
Paul,
Thanks for your blog. Made me want to thank the good Lord for the blessings he has bestowed upon our family.
God Bless you and your family
gogginguy - I don't think Paul was promoting censorship or limitations on people’s first amendment rights. Rather, I think what he is getting at is that we often forget how powerful words can be, whether written or spoken. Given that, the goal, ultimately, is not to prevent people from speaking their minds, but rather to create a culture where everyone understands how powerful words can be, and where everyone chooses their words more thoughtfully.
Of course this is idealistic and there will always be those who seek to demean others as a way of feeling better about themselves. There also will always be those who really speak with good intentions and nothing but love in their hearts, but simply don’t understand how using the wrong words can hurt someone on a deeply emotional level. Do you censor either of these people? Of course not, and I don’t think that Paul is suggesting that we do. Rather, we focus our energy on educating them. I believe Paul's speech was an attempted means to that end.
Advocacy in Media picked an excellent first keynote speaker.
It's a good concept & I hope it takes hold.
My Down Syndrome Brother passed in '98 and didn't have the capabilities of your Jillian. But at his services, random people got up spontaneously to tell how Stevie had affected their lives. It makes me cry to this day.
Bless you and all your family.
Wow, An amazing blog where we can all share positive thanks.
Thanks Paul.
What a great blog. Love to you and Kerry, and of course, Kelly. You are a great family. I agree with the writer from Milford, this belong on the front page.
Betsy
Hooray! I am so glad that you wrote this! I am the mother of two children, and our baby hat trick will be complete when #3 arrives next month. Our second child, our son, was born with Down syndrome two years ago. His diagnosis was a surprise, and my husband and I had no real frame of reference with which to process the news. We learned quickly that our understanding of Down syndrome was horribly outdated. My son is now almost 2, and has yet to experience a developmental delay. He is running, climbing, talking,walking, singing, tormenting his big sister, and is quite literally the light of our lives. His progress has been nothing short of remarkable, and we have the same expectations for him that we do his big sis, and baby brother on the way: to be healthy, happy and fulfilled. (And it would be nice if he used the money in his 529 plan, too.)
As he's grown and developed, I've undergone a transformation myself. I've gone from being a pretty mellow person to being a militant about offensive language and outdated ideas relative to Down syndrome. I'm nice about it, but I've been known to talk to teens who throw out "Retard!" on the playground near my son, and also feel like I have a responsibility to clear up some of the old-school ideas about DS. I cannot tell you how many people have said, "He has Down syndrome? But he looks so normal!" (I am tempted to tell them that we've gotten good at hiding his third eye.)
Anyway, Paul, thanks for the column, and for writing about your Jillian with such pride and good humor. You and your family are the trailblazers who've made it easier for parents like me, and I can't wait to see what our kids accomplish!
What you and Kerry have done is helped make the path for other families a little easier. You make teachers reexamine what they do..not just for kids with Down Syndrome and other disabilities, but all kids. Perhaps it's not the path you wanted, but it's certainly an important one. I know this because I met you along that path as her teacher. I see the impact Jillian has had on people and it will be part of her legacy.
What I admire about what you have done as a family is that you have always believed in Jillian, advocated for her and made sure she worked to her potential. There are never excuses. I wish all brothers treated their sisters as Kelly treats Jillian.
What I admire about Jillian is that she believes in herself. She sees herself in a bright light. Nothing is impossible and dreams of going to college and working with kids.
We can all learn a lesson about the words we choose and the beliefs we hold.
Thanks for Jillian and for always challenging us to think. ~Nancy~
Last night I went to a local high school program where the kids were raising money for NORD (National Organization for Rare Diseases.) They classified a rare disease as any that had 200,000 or fewer with that condition. However, there were about 6000 rare diseases, and the total number covered is about 25 million people.
As I read through this list that was entirely new to me, I saw the pots of money dedicated to the different rare diseases. Some were at only about $9,000. or so.
I guess that's better than nothing, but how in the world can you do research on any disease with only $9000.???
And, how much we don't know about those around us, even sports writers.
....until you've walked a mile in their shoes.
Correction to my 3:06: NORD = National Assoc. Rare "D"isorders.
I wrote "D"iseases.
Sorry.
Paul - Thanks for posting about the power of words and your daughter Jillian.
Your commentary proves your point that words have great power - as I suspect more readers minds and hearts are shaped by the words you spoke to the Advocacy in Media group than anything you might write or say about sports.
As mentioned by others I hope you would put your commentary into the Enqr. It needs to be seen by many more than just those who read your blog.
Best Wishes to you, Jillian and
your family.
Dave Vandivier
Man, great stuff, PD! I have worked as a volunteer Boy Scout leader for many years, and the most rewarding experience I ever had in all my Scouting years came when our troop attended a Summer Camp in Tennessee called Buck Toms. Another leader with our group towed his boat down, and offered his services to the camp doing watercraft merit badges, including waterskiing. There happened to be a troop of special needs socuts at camp that week, many with Downs, and many of those young men were in the waterskiing classes. I had the singular priveledge of assisting with the merit badge classes, and had the best time of my life. I have been to many other summer camps, but none have ever left such a mark on me as that week did. I learned more from those scouts than anything they learned from me, and I believe I am a better person for having been a student in their class. Keep up the good work, we're right alongside you, Paul.
Dave B.
Your post & Nancy's (9:25) were simply wonderful.
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